Frequently Asked Questions

What is the Patient Partnership Program (PPP)?

The Patient Partnership Program is a global forum made up of a small group of members from AstraZeneca teams and patients/carers with personal or professional expertise in a given disease area whose goal is to learn from each other and co-create patient centric medicines and solutions throughout drug development.

Who can participate in the Patient Partnership Program?

At this time, the PPP is in a pilot phase to include eligible individuals living with moderate to severe asthma or ovarian cancer, or carers of someone with ovarian cancer. PPP partners must also have personal or professional experience in such areas as medicine, scientific research, health marketing, patient advocacy/government affairs, health education, market access, drug safety and/or digital health. The program also requires advisors to be:

  • 18 years or older
  • Fluent in English (written and spoken)
  • Resident of either Canada, France, Germany, United Kingdom, USA, Spain, or Sweden

What do Patient Partnership Program Partners do?

Based upon their area(s) of functional expertise and their personal health experiences, PPP partners will share their opinions, ideas, perspectives and insights with AZ teams about projects in a number of different areas such as clinical development, marketing or disease education. Meetings may take place via telephone, email, video conference and/or in-person.

What level of time commitment is required if I decide to join the Patient Partnership Program?

Time commitment will vary depending on project needs and meeting types e.g. telephone, email, and in-person meetings. Once enrolled and patient partners are matched to specific projects, project details such as patient partner's role and responsibilities and time commitments will be discussed and agreed upon between AZ project sponsors and patient partners prior to initiation of activities. It is anticipated that discussions over telephone or video conference may require less number of hours than in-person meetings which may require travel time. You are not obligated to participate in an activity if invited to do so.

Is travel required?

It is anticipated that most work will be co-created via teleconference/video conference or email. Extensive travel is not anticipated (likely no more than once or twice per year for a day or two, if at all).

Why must I sign the Privacy Notice & Consent Authorization to participate?

AstraZeneca takes the privacy and security of your Personal Data very seriously. The Privacy Notice and Consent Authorization is used to outline and agree on what personal data we will collect from you and how we will use it. We are happy to explain the Authorization in greater detail and discuss any of your specific questions or concerns individually as needed. We are unable to consider you for the program without a signed Authorization confirming your willingness to share your personal and health information. Additional information about the way AstraZeneca handles privacy can be found at www.astrazenecaprivacynotice.com

Will you share my personal information with anyone outside of the program?

No. Your personal information is securely collected, stored as confidential and will be used for internal purposes only. We will not share your data with 3rd parties and this data will not be used to market any products or services to you.

Why is the program limited to particular countries?

The initial pilot launch of the PPP in 2016 will focus on Canada, France, Germany, United Kingdom, USA, Spain, and Sweden but we may include additional countries and disease areas in the future.

Why does the Patient Partnership Program only include asthma or ovarian cancer?

During the pilot phase in 2016, we will be focusing on moderate to severe asthma and ovarian cancer. We will learn best practices from this pilot and consider additional disease areas in the near future.

Am I required to be using an AstraZeneca product or treatment to be a part of the program?

No. Products or medical treatments you may be taking (if any) are not relevant to your participation in this program.

Will I be paid for my time and participation?

Compensation for your time and services will be considered and confirmed based upon specific activity needs. If an activity requires travel, the Patient Partnership Program will reimburse you for any reasonable expenses.

Are the Patient Partnership Program staff employees of AstraZeneca?

The Patient Partnership Program is managed entirely by AstraZeneca employees in order to foster lasting relationships and open lines of communication with our patient partners. AstraZeneca has employed the aid of HealthiVibe, a trusted service provider, to assist in the recruitment of patient partners for this program. For more information about HealthiVibe, please visit www.healthivibe.com

What level of technology expertise is required to participate in the program?

The majority of our communication and activities will take place via email, teleconference, or videoconference. If you are not already comfortable with this level of technology use, please let us know.

May I share my experiences of participating in the Patient Partnership Program on social media?

No. We may at times share confidential and/or proprietary information and materials with you, which may belong exclusively to AstraZeneca. We ask that you discuss with us prior to mentioning the name of AstraZeneca and/or using any AstraZeneca information that you obtain during this program. We will explain the terms and conditions of participating in this program via an agreement that will be provided to you in advance of participating in any activities.

How can I give feedback about the Patient Partnership Program?

We have much to learn from you and always welcome your feedback in order to make this program a positive experience for you, your families and also future partners. Please share your ideas and feedback by email at PPP@healthivibe.com.

How many individuals will be enrolled in the Patient Partnership Program?

Approximately a total of 10-12 per disease area.

How long will I be required to participate in the Patient Partnership Program?

Our patient partners are contracted for a minimum period of 1 year, and may be renewed.

May I leave the program if I choose?

Yes. You have the right to terminate participation with the Patient Partnership Program at any time. Please contact us by email at PPP@healthivibe.com should you wish to terminate your participation in the program.