The Patient Partnership Program is a global forum made up of a small group of members from AstraZeneca teams and patients/carers with personal or professional experience in a given disease area whose goal is to learn from each other and co-create patient centric medicines and solutions throughout drug development.
Although it will eventually cover many disease areas, the PPP currently includes eligible individuals living with moderate to severe asthma, moderate to severe lupus, ovarian cancer, or lung cancer, as well as current or past carers for ovarian cancer or lung cancer patients. PPP partners must also have personal or professional experience in such areas as medicine, scientific research, health marketing, patient advocacy/government affairs, health education, market access, drug safety and/or digital health. The program also requires advisors to be:
Time commitment will vary depending on project needs and meeting types e.g. telephone, email, and in-person meetings. Once enrolled and patient partners are matched to specific projects, project details such as patient partner's role and responsibilities and time commitments will be discussed and agreed upon between AZ project sponsors and patient partners prior to initiation of activities. It is anticipated that discussions over telephone or video conference may require less number of hours than in-person meetings which may require travel time. You are not obligated to participate in an activity if invited to do so.
It is anticipated that most work will be co-created via teleconference/video conference or email. Extensive travel is not anticipated (likely no more than once or twice per year for a day or two, if at all).
AstraZeneca takes the privacy and security of your Personal Data very seriously. The Privacy Notice and Consent Authorization is used to outline and agree on what personal data we will collect from you and how we will use it. We are happy to explain the Authorization in greater detail and discuss any of your specific questions or concerns individually as needed. We are unable to consider you for the program without a signed Authorization confirming your willingness to share your personal and health information. Additional information about the way AstraZeneca handles privacy can be found at www.astrazenecaprivacynotice.com
No. Your personal information is securely collected, stored as confidential and will be used for internal purposes only. We will not share your data with 3rd parties and this data will not be used to market any products or services to you.
The PPP is currently focused on Canada, Germany, United Kingdom, USA, Spain, Belgium, Italy, China, South Korea, Japan and Australia, depending on the disease area. We may include additional countries and disease areas in the future.
The 2016 pilot phase focused on moderate to severe asthma and ovarian cancer. Shortly afterward, lupus and lung cancer were also added. We are learning best practices to create the most effective Patient Partnership Program from these initial efforts and will add additional disease areas in the near future.
No. Depending on the disease area of the PPP you are applying for, you may be required to be on a maintenance medication, but not on any AstraZeneca products specifically.
Compensation for your time and services will be considered and confirmed based upon specific activity needs. If an activity requires travel, the Patient Partnership Program will reimburse you for any reasonable expenses.
The Patient Partnership Program is managed entirely by AstraZeneca employees in order to foster lasting relationships and open lines of communication with our patient partners. AstraZeneca has employed the aid of HealthiVibe, a trusted service provider, to assist in the recruitment of patient partners for this program. For more information about HealthiVibe, please visit www.healthivibe.com
The majority of our communication and activities will take place via email, teleconference, or videoconference. If you are not already comfortable with this level of technology use, please let us know.
No. We may at times share confidential and/or proprietary information and materials with you, which may belong exclusively to AstraZeneca. We ask that you discuss with us prior to mentioning the name of AstraZeneca and/or using any AstraZeneca information that you obtain during this program. We will explain the terms and conditions of participating in this program via an agreement that will be provided to you in advance of participating in any activities.
We have much to learn from you and always welcome your feedback in order to make this program a positive experience for you, your families and also future partners. Please share your ideas and feedback by email at PPP@healthivibe.com.
Approximately a total of 10-12 per disease area.
Our patient partners are contracted for a minimum period of 1 year, and may be renewed.
Yes. You have the right to terminate participation with the Patient Partnership Program at any time. Please contact us by email at PPP@healthivibe.com should you wish to terminate your participation in the program.